Watching the SHARP 2023 conference on catchup

I’m a book historian, with a PhD in historic Scottish reading habits. For many years I have been a member of SHARP, the Society for the History of Authorship, Reading & Publishing. I have also attended numerous SHARP academic conferences in person, since 2005, presenting papers at a number of them. Though now attendance in person isn’t feasible any more for me, given my progressive neurological disease.

During the Covid pandemic era some of the SHARP conference content has been available to view online, though this has been varied by year in terms of number of online events. However this year, 2023, the conference was run completely online, organised by the University of Otago in New Zealand, but streaming worldwide, both to watch live and on catchup. This way speakers and attendees from all over the world could participate.

I was too ill to offer a talk this year, and also too ill in late June to watch the conference live. However I’ve just enjoyed watching it on catchup. Talks as originally streamed via Zoom were available for paid attendees to watch on catchup through August, using a web browser Zoom interface (which my laptop browser was a bit flaky over, but we got there!). I had also printed out the programme, and noted which talks were of most interest to me to watch, given my limited time. Here are the panels I watched over the last couple of months:

• Readers on Bookstagram
• Eighteenth-century Libraries Online: An Introduction and Showcase
• Special Collections’ Pedagogies as Immersive Encounters
• Dickens as Author and Publisher
• Networks of Support
• ‘They Are Books to Me’ (Until they Aren’t): Reader Experiences of the Realness of Electronic Books.
• Traces of Readers
• Black Voices in North American Colonial Print
• Counterculture and Collections
• Censorship in Spain and Mexico
• Reading Together and On Screen
• Digital Platforms and New Opportunities in Book History

Most of these panels had a couple of speakers plus a chair. I must thank all the speakers and chairs I saw, for what was a very efficiently run series of talks. Plus thanks to the people taking part after in the Q&A sessions for each panel, even if as a catchup viewer I was not able to take part in the live Q&As myself. And enormous thanks to the technical team keeping things running smoothly, and to the organisers of the conference. Though I was surprised there was no directly provided chat facility to assist networking and communications between attendees. For example a Discord facility could have helped here.

My own book history research focuses on reading habits, primarily in seventeenth, eighteenth and nineteenth century Scotland. However I have wider book history interests, both in time and space, and also theme. So I was delighted to watch many talks from this conference. Every single talk I watched inspired me in some way or another, whether it be research questions, interesting areas new to me to follow up, or methodology or presentation. I was constantly taking screen shots of interesting things for later followup.

A particular highlight for me was Laura Dietz’s keynote on electronic books. Due to my progressive neurological disease I have struggled increasingly with print books since the late 1990s, including throughout my PhD. I am a passionate advocate of ebooks as a valid form of reading, and angry that this can be dismissed too readily by some readers and also some academic book historians. If I’d given a talk to SHARP this year it was going to be a very personal one about my own experiences as a disabled reader who is both academic book historian and enthusiastic reader, and relies on ebooks for accessibility reasons. Laura’s talk touched on this, discussing results from a survey researching in this reader. And some of the people who had responded echoed my views. So I felt represented.

I am also an enthusiastic member of online book groups, so talks about Bookstagram and communal book club reading appealed. Likewise learning about Black book history topics was enlightening. And of course familiar areas to me, such as the Liverpool Eighteenth-Century Libraries Online group presenting a demo of their database plus initial findings.

I know that there is a push back towards face to face conferences, including in SHARP. But I hope that online streaming – and some form of hybrid – will continue to allow access to the conference for people who cannot be there in person, whether for economic reasons, disability or health risks, family or caring commitments, or aspects of geography. SHARP 2023 has been a delight for me, even on catchup. I hope that SHARP 2024 will be too.

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Watching the Cymera writing festival on catchup

This passed me by in previous years, but this year I was lucky to find out in time about the Cymera festival of fantasy, scifi and horror writing. It takes place in Edinburgh, but in recent years due to Covid has been online too. It took place in early June and I bought a digital weekend pass. This let me watch events streamed live, but more importantly let me also watch after on catchup. I had until today, 3rd July, to watch them, and have been putting in the time in recent weeks to get through as many as I could. Today I watched my last talk, my 22nd. This is a quite incredible tally for seriously ill me to have managed. And as someone with a very restricting neurological illness (I am mostly bedbound now, and asleep most of the time) it was a marvellous opportunity to watch and enjoy things from home at my own convenience that in the past you would have to be there in person to see.

I watched a huge list of panels and author chats, as listed below. Initially looking through the programme before the event I spotted 3-5 events that immediately jumped out to me. Events taking place live in Edinburgh that were streaming too, or Zoom chats that would be available to watch either live or on catchup for digital ticket holders later. However because I bought a digital weekend pass (£50, though available earlier at £40) I could watch *everything* recorded live and on catchup. And in practice I ended up watching way, way more than even I could hope. Not all the talks aired, but a huge number of them.

• Folkways with JJA Harwood and Kit Whitfield
• Cityscapes with Adrian Tchaikovsky, E.C. Hibbs and J.L. Worrad
• Expanding Universes with Aliette De Bodard and Ann Leckie
• Dead Weird with Gemma Amor, John McGlade and Heather Parry
• Unlikely Friendships with Travis Baldree and Heather Fawcett
• Haunted and Hunted with Fiona Barnett, Anya Bergman and Catriona Ward
• Catching Up With Helen Sedgwick
• War Stories with Gareth Hanrahan, Anna Smith Spark and Ian Whates
• The Epic’s New Clothes with Sharon Emmerichs, Juliet McKenna and Claire North
• It’s Grim up Norse with Thilde Kold Holdt, Shauna Lawless and Suzie Wilde
• N.K. Jemisin in conversation with Tasha Suri
• Daring Deeds with Justin Lee Anderson and Sebastien de Castell
• Adventures in Time and Space with A.G. Riddle and Gareth Worthington
• Catching Up With Silvia Moreno-Garcia
• Connection, Interrupted with Nina Allan, Cory Doctorow and Ian McDonald
• Catching Up With Brent Weeks
• Yesterday’s Tomorrow with Nicholas Binge and Christopher Priest
• New Scottish Stories with Paul Tonner, Letty Wilson and Ell J Walker
• Of Gods and Dragons with Amie Kaufman and L.R. Lam
• Dangerous Magics with Chelsea Abdullah and Hadeer Elsbai
• Underworld with C.K. McDonnell, Sarah Painter and Adam Simcox
• CyberJunk with M.R. Carey, Dave Cook and Ever Dundas

The order in which I watched the events above isn’t representative of what I was most intrigued by. I could flit from event to event, and saved some of the best to last. Many were two or three-author panels based around a theme with a chair person. Others were single author chats with a chair by Zoom.

The range of fantasy, scifi and horror writing covered was immense. There would rarely be a panel where I wouldn’t be adding titles to my book watch list, or even buying something immediately. Some authors I knew already, but I discovered many authors new to me, whose works I now want to read. And despite watching so many of author events I was impressed by how little overlap there was in terms of content. Every panel or chat would give me new insights and experiences into the writing process, as well as touch on the specific themes of that panel and introduce me to the writers and their books.

I would like to thank the organisers for allowing streamed access like this. It was so enabling for me, and as a reader and writer myself I am throughly inspired by having watched these. I would also like to thank the festival team for managing the technology and practicalities so well. This was a very smooth operation. I will definitely be back to watch next year. Though aiming to book my digital weekend earlier so I can benefit from the reduced early bird weekend pass price!

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Gather meeting software accessibility concerns re NarraScope 2022 interactive fiction conference

I was hoping to see some of this year’s online NarraScope interactive fiction conference in July. But I’ve just found out that it’s running on Gather this year, a meeting/conference system based largely on a virtual model of a conference area in the computer, top-down old-style graphics with little person avatars etc. Which all sounds fine and dandy, but I’ve known people struggle with it at large events. And for disability reasons I don’t think I could manage it successfully. It can also work very poorly sometimes on mobile devices, and I would be tuning in from bed. Luckily the talks will be recorded for later viewing, speaker permissions allowing. But I’m not signing up to attend this live. I have voiced my concerns about this software to the organisers, but it would be too late to change their plans now. Interactive fiction has a very large number of disabled users, many of whom might struggle to use Gather, for different reasons eg blind or partially sighted, hand control problems, cognitive issues re processing lots of info etc.

Gather meeting software in action

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Thoughts on World Book Day, childhood reading and having done a PhD on reading habits

Today is World Book Day 2022, a celebration of reading in the UK and Ireland, targeted especially at children and young people. It is a day for celebrating the power of reading, but also for showing youngsters how they can access it and benefit from it. And I am a big fan.

I was an enthusiastic childhood reader, with early visits to Melrose public library, and still remember borrowing Enid Blyton books and Tudor history. Then when we moved back to Hawick I devoured first the children’s basement floor of the Hawick public library – a grand Carnegie library with lovely architecture – and then was allowed to borrow from the “grown ups” section. There I devoured masses of Agatha Christie books, science fiction and fantasy, as well as doing research into my family history in the research part of the library. I also borrowed books from primary school and secondary school libraries, and the Wilton church Sunday School small library.

Years on reading is much harder for me, thanks to a progressive neurological disease that struck in 1994 when I was just 22. Soon I could no longer easily manage print for extended periods, even large print was troublesome. But then eBooks came along, which I could adjust to have a quite ginormous font, and I was reading again. I adore reading, and on my Kindle usually have a couple of novels on the go, as well as various non fiction books. All read with a gargantuan font that lets me keep reading. I pick up a lot of bargain eBooks in sales, and also read free ones from Project Gutenberg.

However World Book Day has a special significance for me now because between 2003 and 2010 I completed a part time PhD at Dundee University on Scottish reading habits between circa 1750 and 1820. This was a surprising route to take. I’d studied first computer science at university until my illness struck. Then I retrained as a historian. But I was not in any way a literature student.

I worked part time as a research assistant 2003-4 on Bob Harris’s Scottish Small Towns Project, working on the pilot study in Angus. And among other things this introduced me to the history of reading and book history, as I uncovered the history of cultural activity in Angus in the 18th and early 19th centuries, including the spread of libraries, newspapers and bookshops. I discovered that library borrowing records existed rarely in Scotland (though since then more have turned up, all welcome!) and how researchers like Paul Kaufman had showed these could be analysed. And I was entranced.

At the same time I was completing a taught MPhil degree and pondering if I wanted to try for a history PhD. And I couldn’t get away from wanting to research reading habits more. Bob Harris agreed to supervise me, and I started a self funded PhD, though later won funding from AHRC for the rest of my part-time PhD. My approach was very much social and cultural history rather than literary, as I got to grips researching what Scots were reading and how they fitted this into their lives in the late 18th and early 19th centuries. Magic, though with my own reading problems due to illness/disability I was frequently envious of how “my readers” in the past were managing to access books!

My PhD thesis is online and freely available for all to read. In a nutshell though it showed how reading was growing in Scotland in this period, and how important reading was as an activity throughout the country and at all levels of society. A very positive thumbs up for reading.

So whenever World Book Day comes around I think back to my historic research in this field, while at the same time looking forward to my future reading. I am so lucky I got to complete a PhD on this topic. And so grateful I can still read, albeit with considerable adjustments, and a gargantuan font, thankfully helped hugely by adjustable eBooks.

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Thoughts on attending the SHARP 2021 book history conference

This week I attended the online SHARP 2021 book history conference. SHARP is the Society for the History of Authorship, Reading and Publishing, and holds annual academic conferences for book historians. Usually these are held face to face, and I have attended many of them in the past. But this year, because of the Covid pandemic, it was a fully online conference, hosted by the University of Muenster. The conference ran over five days, from Monday 26th July 2021 to Friday 30th July 2021, with often very packed days of parallel sessions, up to 12 hours or so each day.

I was particularly grateful for the conference being online because due to my progressive neurological disease it is now increasingly difficult for me to attend face to face conferences, even those held relatively nearby to me. It may also not be feasible for me to travel to attend any more international ones, given how knocked out I am from my brain disease, the logistics of getting there and extra costs/difficulties of attending with a helper, and problems re wheelchair access.

Even so I could only attend a small fraction of the time available to attendees, being knocked out sleeping for up to 18 hours a day due to my brain disease. Luckily I could attend from bed, in my pyjamas, with my iPad and headphones. Hence my not turning my camera on at any point when asking questions!

The conference programme was full of variety and interest, as well as some experimentation in the format of panels. There were quite a lot of 5-1-5 panels where 5 speakers would each speak for 5 minutes about a single slide per speaker before a Q&A. I must admit that I was initially rather baffled at the start of the week by what 5-1-5 meant, and ended up going back to the conference’s original call for papers for clarification! Generally though I tuned in for 60 minute panels with 2 speakers (the conference’s 60 minute variant on the more traditional 90 minute panels with 3 speakers), where each would speak for 20 minutes, before usually a lively Q&A with the audience. All handled by a chair – always very effectively in my experience at SHARP 2021. I must also praise the speakers for running admirably to time, allowing lots of time for audience participation.

The conference’s primary online delivery method was Zoom, with up to 4 rooms used simultaneously for individual sessions. Generally this worked well for me, tuning in on my iPad. Though I had some hiccups on day 2 getting into the relevant room, with initial passcode errors. So I missed the first 25 minutes of that panel, but fortunately caught most of a talk I was particularly keen to see. Online conferencing can sometimes seem very impersonal, but I found it very effective for following speakers and their slides, and for good Q&A sessions afterwards. There was also a lively text chat section available during each session, which was well utilised by audience members to make comments on points mentioned, share references and knowledge, and to ask questions. Other questions were asked live via webcam/microphone as appropriate.

The range of participants at SHARP conferences is always varied, and unusually welcoming to young scholars. But I felt this online version was particularly wide ranging in the people taking part. It was especially nice to see many questions being asked by PhD students, as well as PhD and Masters students presenting their work at the conference alongside more established academics. There was throughout a very strong sense of camaraderie and willingness to help and share information and knowledge, which was very much appreciated.

Most of the sessions were held live and not recorded, so had to be watched at the scheduled time or you’d have missed it. But a fair number were pre recorded, allowing conference attendees to watch when suitable, including throughout August. I even started watching two recorded panels on the Sunday before the conference officially started! This did not allow me to take part in live discussion with the presenters, but was an appreciated and welcome innovation. It probably also helped with some time zone and availability issues. Though it was very nice to see people attending from all around in the world, in multiple time zones. For example North Americans waking up to watch during the day in Europe while Antipodeans were staying up late to catch online panels live.

Over the week and my earlier pre-conference start I watched 9 panels. Topics covered were diverse, ranging over bookselling during a pandemic, biblioforensics and book biography, the early modern English book trade and copyright and stationer wills, dispersed libraries and library organisation (including Samuel Pepys!), the book trade in present day Mexico City and New Delhi, SHARP’s own journal Book History and its new paperback incarnation, new research into Scottish library borrowing registers (a project I’m involved with, having gifted some of my own transcripts of borrowing records from my many years ago PhD on historic Scottish reading habits), translating medieval/Renaissance books between English/Scots and Spanish and vice versa, and initiatives at the Bodleian library in Oxford re digitisation of material. All were fascinating for me, and again just a tiny fraction of the events on offer to attendees over the full 5 days of the conference.

For all the events I attended I was an avid viewer of the presentations. Often participating in the chat too, and asking questions in the panels, sometimes through the text chat, occasionally unmuting my microphone (but camera still off – pyjamas!) to discuss something more complex. Throughout I felt thoroughly engaged, inspired, and eager to do more research of my own, and learn more about some of the issues and topics I learned about during the conference.

A nice bonus is that attending the conference prompted me to rejoin SHARP. I have been a member for many years in the past, but drifted away in recent years, as my progressive disease was worsening quite dramatically. But I am still an active researcher of book history and reading history, and attending the conference inspired me to rejoin the society. The only question was whether I would rejoin with a Book History journal included. While attending the event discussing the new incarnation of the journal my mind was made up: get the new paperback journal! Plus I should add that the $38 reduced rate for students / independent scholars / retirees helped too!

Over the coming weeks – throughout August – I plan to watch more recorded panels and keynote sessions. I’m very much looking forward to this. Looking further ahead I hope that I can participate in SHARP conferences in future in some way, albeit remotely. I think it’s unlikely as I say that I can ever attend SHARP in person again. So I hope there will continue to be some online provision, even after most book historians have returned to a more normal way of working.

I also want to thank the organisers for an extremely well run event. I would particularly like to praise conference lead Corinna Norrick-Rühl, who valiantly helped me when I had connection problems. And she must have had so much else to deal with all week! I really appreciated the personal touch.

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Some thoughts on the online Scottish kirk session records

A recent piece of great news for Scottish family historians and also academic historians was the launch online of Scottish kirk session records. Kirk sessions oversee a local parish and its congregation, including in the past in particular disciplinary matters, and also poor relief payments. As a result the kirk session minutes and accounts are a goldmine for historians.

I’ve used these records on and off for 40 years. Some are included in the parish registers of baptisms, marriages and burials, where the kirk session minutes were mixed up with these. But most kirk session records are held separately. For a long time they were in Edinburgh, in the National Records of Scotland (or Scottish Record Office as I long knew it). But increasingly now the manuscript original records are being transferred, where possible, to local archives.

Some years ago the kirk session records were largely digitised, and made available on computer to visitors to the National Records of Scotland, or visitors to a number of satellite archives around Scotland. But this still did not open the records in a widespread way to researchers who could not visit in person. Instead the model was still essentially based around going to Edinburgh.

Now, thankfully, that has changed, with earlier (pre-1870 ish) kirk session records now largely viewable online at ScotlandsPeople.gov.uk. The digitised images can be viewed for free, but are not indexed by name. There is a charge (2 ScotlandsPeople credits = 50p) to download and save a page image to keep. Though often this would not be necessary, especially when browsing.

The user interface is a somewhat mixed bag. Even getting to the kirk session material can be a slight challenge, finding it in the ScotlandsPeople website alongside all the other records – most of which are indexed and searchable by name. Once in the right section there are various search options for the kirk session material, to find the right record set. Though again these are somewhat problematic, e.g. searching for place “Hawick” doesn’t find Wilton parish (the northerly part of Hawick town) which is named in the system as “Wilton (Hawick).

At the moment the biggest downside with the system is that not all available kirk session records from the target period are online yet. More are being uploaded over time, but at the moment you often search, and find no records, or very incomplete ones. Note however that there is also the issue of patchy survival of kirk session material full stop, so often the manuscript originals are lost.

On plus when you do find a parish with records the documents can be extremely rewarding, though this does vary by place. For example for Melrose parish, which I have researched extensively in the 17th and 18th centuries, there is kirk session material online going back to 1642.

Opening a page to view it will vary in what it shows. Often you are presented with two manuscript pages side by side. Luckily there is a zoom function, though it took me a while to find it! It is a little clunky to use, zooming you in greatly initially, then often you will need to zoom out a bit and pan around sideways to find the part you need. Only then can you start properly reading the bit you want.

Of course the real joy is in the content in the records. Genealogists can uncover ancestors’ irregular marriages and get clues re illegitimate births, with mothers typically called in for questioning, and often the father’s name revealed. You may also strike gold re an ancestor getting entangled in another kind of disciplinary dispute with the censorious session members.

For academics the records have immense potential. For anyone undertaking an academic study of a given area any kirk session records from the same place and time are well worth a look. More generally the records give a powerful insight into social conditions, and are a rich source of information on topics such as migration, welfare and poverty, weather, family structures, social values and morals, and the impact locally of wider events.

I can’t write this without commenting on the issue of accessibility. For nearly two decades I have been too ill from my progressive neurological disease to travel to the archives in Edinburgh, or to spend time in local archives. The early digitised version of the kirk session records were effectively cut off from me and anyone else who couldn’t travel to access them. This new online access is transformative, and for me personally will open up multiple avenues of academic research, as well as family history research. So thank you, NRS/SP, not least for making these free to view! I just hope the range and depth of records will continue to grow.

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First Zoom talk done and dusted

I was invited to speak at the Scottish History Society AGM today. Which normally would be face to face in Edinburgh, but this year – of course – is online, by Zoom. I was speaking about a forthcoming publication I have with them – transcript plus accompanying essay – about a poem recording events at the local court in Melrose in 1682. A poem written back then.

It went very well. I’ve been so extremely ill with my progressive neurological disease lately, and am still recovering from that flare in symptoms, that I was worried I wouldn’t be strong enough, especially if I’d had little sleep beforehand. When my brain shuts down it’s quick and sudden, with initially slurred speech then rapid confusion. And that could have struck at any point through my 20-minute slot (10/15-minute talk, plus time for questions after).

But I made it through. The audience enjoyed the talk, and are looking forward to reading the full piece when it is published. I was able to field the many interesting questions and discussion. The other talks were stimulating and interesting, and I was able to participate in their Q&As too. And best of all I felt engaged in and part of the academic community in a way I haven’t for ages.

Meanwhile though back to sleep more …

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Reconsidering attending academic conferences for disability reasons

I’ve blogged before about the considerable difficulties I have attending academic conferences now, due to a neurological illness.

I’ve persevered for years with access problems and excessive fatigue meaning that I can only attend often a day at most, or have to do a day at the conference, then a day of solid rest, then another day back at the conference, and so on. But even though my disease is doing better at the moment, I’m now seriously considering whether it will be practical for me to attend academic conferences from now on. This is despite the pleasure that I can get from attending a conference, and the academic stimulation, and benefits of networking etc.

To be fair a lot of conference organisers have been enormously helpful in helping me attend. In particular many have allowed my husband to attend free as my carer, to help me get around, with or without my wheelchair, fetch food etc. But equally I’ve had huge problems. A particularly notorious example was at the SHARP 2016 book history conference at the Bibliotheque Nationale in Paris. Despite assurances in advance, and my confirming repeatedly to organisers which talks I wanted to go to in my wheelchair, the conference organisers scheduled one of my desired panels up a flight of stairs with no lift. A simple human error, yes, but one that caused me considerable difficulties on my sole day at this conference.

Attending international conferences like the Paris one puts particular strains on me. I need to sleep for much of my time there, on alternate days at the very least, so I’m limited in how much I can attend any event. My husband is needed there to help me attend. I don’t have financial support from a university, so we foot the double travel costs ourselves as well as registration fees (my husband usually gets in for free, but I often have to pay a full multi-day conference registration fee, even if only attending on a single day). More worryingly many academic conferences are in university buildings which vary markedly in their accessibility, and, as the Paris example shows, organiser assurances about accessibility aren’t always reliable. And so often it’s just simply not worth the hassle to me.

I don’t want to rule out attending conferences completely, but I think it’s going to be increasingly unlikely that I’ll attend international ones in particular. I had hoped, for example, to attend the SHARP book history conference in Amsterdam in 2020, but for various reasons, largely out of my control, I’m doubtful of doing that now.

But I do still intend to travel overseas. I have travel plans for later this year, but the focus increasingly will be on fun and enjoyment, under my control as much as possible, rather than trying to do something that’s increasingly impractical for me, difficult to manage, and reaps insufficient rewards.

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Visit to Edinburgh Book Festival in August 2018

My husband and I visit the Edinburgh Book Festival every other year or so, and were back again last week. We’d booked to go and see a talk by Brian May and photographic historian Roger Taylor. But I was also keen to see the bookshops again, which I always find excellent.

This is the first year that I’ve found the crowds a particular problem. I have to use my wheelchair when I’m there, with my husband pushing, and this year getting past other visitors, who’d often stop to chat in the walkways, was a significant problem. I don’t know if there were higher numbers of people attending this year, or what, but it seemed more of an issue than usual. Note we were there on Wednesday 15th August, in the late afternoon and early evening.

I was also struck by how difficult it can be to get the wheelchair into the tents, bookshops, talk venues etc. There’s always quite a slope to go up, and a ridge to get past or bump over. I could never wheel myself in. Even my husband, who’s been pushing my wheelchair for years, struggled, again not helped by people milling around.

On the plus the bookshops were a delight. I always find things there that are real gems for me, that I wouldn’t know of otherwise. My particular highlights this year included a book of 100 Gaelic WW1 poems, most of them written during or shortly after the war, with dual language Gaelic and English translations facing each other in the book. My other main highlight was finding a book of essays by Philip Pullman about storytelling in its many forms. I was reluctant to buy such a chunky book – I have too many books already, and wondered where I’d shelve it! But it drew me back, and I was very pleased to take it away and delighted when I started reading it. Something else I’d have bought before had I known it existed.

Book haul from Edinburgh Book Festival

The talk by Brian May and Roger Taylor was fantastic. They were speaking about Scottish Victorian stereoscopic photographer George Washington Wilson, and launching Roger’s book about him. The audience were all given 3D glasses to wear, which worked from a vast range of seating positions, and enabled us to enjoy the original stereoscopic photos. Quite magical, and enormous fun. Sadly Brian and Roger couldn’t do a signing afterwards, having to dash off to a BBC interview, but we were all offered signed bookplates to go in the book.

Audience at Brian May and Roger Taylor talk (photo by Nicole Ettinger and from Brian May on Instagram)

So a fun trip, but some disability niggles. We’ll be back in future, but definitely with my wheelchair, albeit anticipating problems.

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Problems as a disabled academic attending conferences

Inspired by a very thorough piece in the Guardian newspaper today by Kate Sang I wanted to reflect a bit on my own problems attending academic conferences.

Decades ago I was a young and healthy academic, about to start a computer science PhD. I could attend conferences in their full form: going to all sessions, all days, including meals and socialising.

Shortly after that I fell ill, at just age 22, with a neurological illness very similar to multiple sclerosis. It took some years for me to be diagnosed with cerebral vasculitis, but by then I’d had to drop out of that science PhD. Fortunately I retrained part-time as a historian, picking up three more degrees, including PhD. My disease is incurable, progressive in my case, and is treated lifelong with chemotherapy drugs and steroids to reduce brain inflammation and slow damage.

I can’t work in a paid form due to my illness. It is severely disabling. I sleep for much of the time, sometimes up to 18 hours a day, every day, due to the brain damage and inflammation. And even when awake I am often very confused and can only work for short periods. Near the end of my history PhD I could only work for five hours total a week, in one hour chunks maximum, spread over many days. But I finished the PhD. And I am now active as an academic. I publish academic journal papers, undertake new research projects, and speak at conferences and attend as an audience member. I have an honorary research fellowship from my university, though costs of attending events etc. are paid by myself.

Whereas 25 years ago I could attend a conference in its entirety, now I have to pick at most one or two days, with a day of rest in between. I will also usually have to be modest in my expectations re the number of panels to attend.

Firstly there are the practical issues of getting to the conference. I’m typically travelling with a wheelchair, which usually makes connections by train etc. difficult. Normally if I am flying to a venue it is far easier to get a taxi – albeit costly – from the airport to the hotel. But this only works if it’s within reasonable and affordable travelling distance. A few years ago I was invited to speak at a book history conference in Germany, which would have been very good for my research interests and academic networking. But the venue was far away from the airport I’d be using, and a taxi trip would be quite impractical in journey time and cost terms. Nor could I rely on being able to access trains. So reluctantly I declined the invitation. Fortunately I was asked years later if I would like to contribute a piece to the conference’s collection of essays. I submitted my piece, and the book is due to be published in a month.

Even on the spot physical accessibility is a major concern. I normally now use two sticks, but when at a lengthy academic event I need to use my manual wheelchair – with husband along to help push – to manage to last the day. And getting into and around academic venues can be highly problematic.

One thing I should praise is I’ve found conference organisers usually very helpful in helping my husband attend as my carer. He shouldn’t have to pay, since he is just there to push me around and help me navigate obstacles like doors etc. He is also an academic, but in a very different field from me. So he’s not there to listen to the talks. Most conferences allow him to attend for free. That is enormously helpful, and not something I expected. We still have double travelling costs, but not paying double conference fees does ease the cost for us to a certain extent.

Though against that positive experience very few academic conferences offer daily registration fees. At least in my field – humanities – you typically have to pay for the full conference or nothing. And with me often only attending half or even a third of the conference this makes them particularly costly for the time and benefit that I’m going to get in return from the event. Sometimes I do get a reduced attendance fee though. I am particularly grateful to a recent conference organiser, who given how little I was going to be there, let me attend for free. And my husband as well of course. Thank you Drew!

Once there, if a venue has stairs to reach talks I cannot possibly attend. Sometimes organisers move rooms, which I am very grateful for when it happens. But it’s not just about the room where the talks take place, but also about getting into a toilet, and getting to meals. I have severe bladder incontinence from my brain damage, which in particular causes huge problems with urgency and frequency. I need to go to the toilet a *lot*. Having a wheelchair toilet beside the room is good, but if I have to go constantly during the talks – as has happened – it can be very awkward.

One conference that I regularly attend relocated to a ground floor room, with a toilet beside it, which is good. But the meals including lunch were elsewhere in the building, and I would not be able to get there, without major difficulty. It was far easier for me to stay trapped in the room during the lengthy lunch break, while my husband fetched food for me. This cut down the vital networking with fellow academics I could do, though thankfully some historian contacts specifically sought me out at these times, and had lengthy chats with me in the room on my own. Likewise the book stands of academic books to buy at this conference were upstairs. No way could I get there. So again husband was dispatched, with iPad, to take photos for me to browse, and also to bring any specific titles of interest down to me to look at. In this instance the Brill publishing rep actually came downstairs to take the order from me directly. He was keen to help, but it was still frustrating for me not to be able to browse through all the books in person.

Sometimes I attend conferences with multiple streams of talks on at once, in many rooms, even a dozen and more in one case. For these conferences I will always try to let the organisers know in advance which specific panels I want to attend, to make sure I can reach them ok on the day, and rooms can be swapped in advance if need be. But that only works if the messages are passed on correctly at the other end. At the SHARP 2016 book history conference in Paris, at the Bibliotheque Nationale, I’d checked all the talks in advance, and was assured by the organisers that I would be able to reach them. When I got there on the day I found a panel I very much wanted to go to was up many stairs, in a building without a lift …

But perhaps the worst aspect for conferences for me as a disabled academic is how intensive they are, and how crammed the days are. Often they start at 9am or even 8am, and continue until 6pm or 7pm, with a packed set of talks running throughout those periods. Very tiring in brain concentration terms, and much stamina needed to get through. I understand organisers are trying to fit as much in as possible for attendees. But it is exhausting, even for fit and healthy academics, who can find it wearing. For me it’s impossible to attend even a full day of this. So sometimes I’ll have to choose morning or afternoon, or if I am lucky afternoon and evening. Or I need to try to factor in some sort of rest time, which is difficult in a venue that I don’t know well, crammed with conference goers. I remember at an Ada Lovelace event in Oxford a few years ago that I went back into the main lecture theatre – then deserted – during lunch, to have a bit of a rest, and quiet time to myself, while everyone else socialised out in the lunch area. That quiet time refreshed me enough mentally to allow me to stay for some more talks in the afternoon.

I know that it’s unusual for someone to be as bad as me health-wise and still want to attend academic conferences. But the problems that I have described aren’t unique to me, and some of them – especially issues of fatigue and mobility issues – will be shared by other academics. Not all of these academics will be so obviously disabled. I remember that when one conference I mentioned above was moved to a ground floor venue this turned out to benefit quite a few other attendees, who would not have said anything before. So more accessible venues can benefit a wider academic population.

In practical terms I’m not sure how much longer I can keep attending academic conferences. And if I do it will have to always be done in a modest way, within my limitations. With travel costs, and logistical challenges, there is a trade off between costs and benefit. I will have to continue to decide if it is worth it for me. But for now it is. I just hope not to run into too many practical challenges in future conferences …

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